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EVENT DETAILS |
***RSVP Here: https://Hack4Rare.com ***
Virtual hackathon: June 25-July 30
Hack for RARE 2021 is a virtual hackathon event organized by the Childrens Tumor Foundation & MIT Hacking Medicine.
For the first time, we are inviting rare disease organizations to join us & create challenges that will advance the research fields around a distinct group of rare genetic conditions:
- Neurofibromatosis (NF1, NF2, schwannomatosis), a family of three conditions that cause tumors to grow on nerve terminations & other morbidities,
- RASopathies (Cardio-facio cutaneous CFC, Costello CS, Noonan NS), a group of rare genetic conditions caused by mutations in genes of the Ras-MAPK signaling pathway (of which NF1 is one).
- PTEN Hamartoma Tumor Syndrome (PHTS), a rare genetic condition that causes increased risk for certain cancers, benign growths, & neurodevelopmental conditions.
- Desmoid Tumor, a very rare neoplasm that develops from fibroblasts. These tumors do not have the ability to metastasize, but they can cause significant morbidity & mortality by local invasion & they are prone to local recurrence.
In addition to their specific natures & unique set of challenges, most of these syndromes are classified as Tumor Predisposition Syndromes, meaning patients have a genetic variant identified with increased risk for tumors to develop. Tumors, initially benign, could transform into malignant causing cancer. In this hackathon, you will be provided with access to research data sets, patient data, literature collections, & other resources to explore. You will have access to mentors (both discipline & disease experts), including researchers & clinicians. You will also have access to patients to learn first-person experiences & needs so you can develop applicable, real-world solutions!
HACK4RARE Objectives
- Ignite interest in the rare disease research community from experts outside the field.
- Integrate technology into the research process through open innovation.
- Attract young scientists to the rare disease community.
- Share data & resources to the benefit of open science.
- Improve the lives of rare disease patients by analyzing real case studies & providing solutions to unmet needs.
Prizes
- Each challenge track will have a 1st, 2nd, & 3rd place winner with cash prizes of $1,000, $750, & $500 respectively.
- Each track will also have further prizes such as incubation prizes, swag, meet & greet opportunities, etc. Be sure to check each challenge track's page to learn more about the prizes!
Hackathon Tracks:
- Challenge Track 1: Neurofibromatosis
- Challenge Track 2: PTEN Hamartoma Tumor Syndrome
- Challenge Track 3: RASopathies
- Collaborative Track: Desmoid Tumors Patient Case
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